Patients Included: 2015

AcademyHealth is pleased to announce that Concordium 2015 is officially Patients Included accredited. 

The Patients Included charter provides conference organizers with a means of demonstrating that their events are committed to incorporating the experience of patients as experts in living with their condition while ensuring they are neither excluded nor exploited. Patients Included status is self-assessed. A conference successfully meeting all five of the charter’s clauses may accredit itself as a Patients Included event. Concordium 2015 fulfills the five Patients Included charter clauses in the following ways:

Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.

  • Patient and consumer representatives and advocates were invited to join the advisory committee. Patient representation on the committee provided feedback and suggestions about the conference theme, invited speakers, and the call for abstracts.

Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.

  • Patients, consumers, and caregivers were explicitly invited to submit to the call for abstracts as it was promoted to PCORNet Patient Powered Research Networks (PPRNs) and Consumer Patient Roundtable (CPR) members, with mention of travel support. 

Travel and accommodation expenses for patients or caregivers participating in the advertised program are paid in full, in advance. Scholarships are provided by the conference organizers to allow patients or caregivers affected by the relevant issues to attend as delegates.

  • Travel and registrations were budgeted for patient speakers and attendees. Priority for financial assistance was given to patients, consumers, and caregivers, safety net providers, and speakers accepted to the peer-reviewed program. Reduced registration was also made available for all invited speakers and participants who identified themselves as needing financial assistance.   

The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other program elements are open to patient delegates.

  • Disability accommodations were made for the conference as they are for all AcademyHealth meetings.

Access for virtual participants is facilitated, with free streaming video provided online wherever possible.

  • A free 90-minute webinar with recap and highlights from the meeting will be held on October 29 following the event.  

Patients, caregivers, and patient advocates who will be participating in and attending Concordium 2015 include: 

  • Mark Gorman, Patient Advocate
  • Erin Mackay, Associate Director, Health Information Technology Programs, National Partnership for Women & Families
  • Anna McCollister-Slipp, Co-founder, Galileo Analytics
  • Megan O’Boyle, Principal Investigator, Phelan-McDermid Syndrome Foundation
  • Carolyn Petersen, Senior Editor at Mayo Clinic and representative for Patients, Caregivers and Patient Advocates on the PCORI Advisory Panel
  • Gilbert Salinas, Director of Patient Centered Care, Rancho Los Amigos National Rehabilitation Center

Patients, caregivers, and patient advocates will lead or participate in panels and presentations at Concordium 2015 including: 

  • Opening Plenary: Real Transformation: Paving the Road to Better Care, Better Spending
  • Lunch Plenary: Bringing Engagement to Scale: Patients, Partners, and Participants
  • Panel Discussion: Using Patient Generated Data to Improve Health
  • Challenge Workshop: Maximizing the Value of Patient Reported Outcomes in Practice
  • Challenge Workshop: Research Participation in a Learning Health System